Thursday, April 24, 2014

Undercover - #atozchallenge


I am literally under the "covers" today. I'm recovering from my injections and taking it easy. When I don't feel well, I love daydreaming of happy times. I took this picture from the plane as we flew away from the island just a few weeks ago. So today as I lay here....I'm thinking of island life....warm breezes, the bluest water I have ever seen, with blues I had only imagined before going to the island, cold frozen sweet drinks, sand in my toes, holding my guys hand, laughing with my girls, dancing and eating mouth watering food. Your mind can take you anywhere.....

Where is your mind today? 

Wednesday, April 23, 2014

Toxin - #atozchallenge


Toxin always sounds like such a bad word but sometimes it can be turned into something good. I got my injections today. I get Xeomin, a type of Botox (made from the Botulinum Toxin) for Dystonia. You've all heard of Botulism, which is where the Botulinum Toxin comes from, it is one of the most lethal toxins known to man. It has even been considered to be used as biological weapon. BUT....in my case and for many others, they have turned it into something that helps. 

Injecting Botox into my spasming muscles, blocks the signals my brain is sending and calms them down, allowing me to hold my head in a normal position. It also helps relieve some of the pain. As they inject, they can see how much each muscle is spasming by looking at the screen, a calm muscle would show a flat line. I get these injections every 10-12 weeks and get about 10 shots in my neck & shoulders. With these injections come a lot of side effects, but once I'm through those, brighter days are ahead. 

So today, as much as I dislike this procedure and hope someday that there is a better solution....I am thankful. Thankful for science, my doctors and thankful for the reprieve it gives me. Oh and thankful for my docs steady hands! :-) 

Tuesday, April 22, 2014

Surrender - #atozchallenge


Happy Earth Day! I took this shot a few autumns ago. It was a beautiful day, I looked up, saw all this color and was swept away in the moment. I can't imagine what I/we would do without Mother Nature's inspiration.

Do you think you can give in without giving up? Surrender and still conquer?

I saw my Neurologist today. I'm still, after 7 years, not surrendering....not quite accepting. Fighting something can be a good thing but it also can work against you. If you spend all your energy fighting/focused on the wrong thing that leaves no energy for the good/right stuff. I know all this but it's still such a dance to find the balance. The trees surrender to the cold season and still come back strong each spring. I need to follow their lead. :-)

Today I'm so grateful for my awesome doctors that see beyond Dystonia and see a person as a whole. Also....for lovely Mother Nature! How about you? What are you grateful for today?

Monday, April 21, 2014

Refuge #atozchallenge




Today's your day, I feel it, You paved the way, Believe it....When you fall get up, oh oh, If you fall get up, eh eh, Tsamina mina zangalewa, Cuz this is Africa! - Lyrics from Waka Waka (This Time for Africa) by Shakira (That's the song playing in video) 

I love that song, such awesome lyrics! I was going through some of my pictures and videos from my recent vacation to Harbour Island, Bahamas and came across this video. It filled my soul because this was one of my favorite nights. The Bahamians throw parties with music, dancing, drinks and the best BBQ. The kids dance in the streets, having fun without any worries. Harbour Island is such a refuge, you feel so safe there, everyone taking care of each other. We danced with all the kids and they LOVED having their pictures taken. Such sweet spirits! 

This post is part of the A to Z Blogging Challenge and this is my grateful video of they day. So blessed to be able enjoy nights like these, to be with family, to dance....to be surrounded by hopeful, happy children. 

What are you grateful for today? Did you have a nice weekend? Easter?